Each year, advocates from coast to coast converge on Washington, D.C. for the Alzheimer’s Association Advocacy Forum. This year was the largest ever forum in its 25-year history, as nearly 1,000 individuals were in attendance.
Wednesday was “Hill Day.” Hundreds of Alzheimer’s advocates sporting purple sashes could be spotted around Capitol Hill in the culmination of the event. Armed with information and personal experiences, delegations made their way through the halls of congressional buildings to lobby elected officials to pledge or continue their support of the fight against Alzheimer’s.
The Central New York Chapter had four voices on the ground in the fight: Cathy James, the Chapter’s CEO; Jared Paventi, the Chapter’s chief communications officer; Jessie Cornell, associate program director for the Chapter’s Southern Tier region; and Eileen Krupka, a volunteer advocate and ambassador to Rep. Dan Maffei.
While the three staff members bring personal and professional perspectives to the fight, it was Krupka’s story that was most illuminating. Her father, Matt Donaghey, died in October after a lengthy fight with Alzheimer’s. As a volunteer, she gave her time to be in Washington and lent an important voice to our cause. Continue reading