Central New York Chapter News & Action Center

The End of Alzheimer's Begins with You.

Alzheimer’s Association, Central New York Chapter Temporarily Moves Kirkpatrick Day Program to Missio Church

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Alzheimer’s Association, Central New York Chapter Chief Executive Officer Catherine James announced today that the Kirkpatrick Day Program, a social adult day program for individuals with Alzheimer’s or other form of dementia, will temporarily move to Missio Church, 620 W. Genesee St., Syracuse, beginning on Thursday, February 19.

The Chapter was forced to move the program because of frozen water pipes at its building, 441 W. Kirkpatrick St., Syracuse. The pipes froze during the record-setting winter temperatures on February 16 and the persistent cold has prevented them from thawing, forcing the program’s closure on February 17 and 18. Chapter officials are concerned that any warm up in temperatures may result in water leaks or broken pipes.

“This move is necessary to protect the health and safety of our participants and staff in both the short- and long-terms,” James said. “If the water pipes do burst, we know that there will be significant cleanup and repair that will result. Moving our program ensures continuity and routine in the lives of the people we serve, even though the activities and services we provide will take place in a different location.”

James said that the move is temporary but could impact the day-to-day business of the day program for the next two weeks. The length of the relocation depends on when water is fully restored, and how much damage results if pipes do burst.

“We have worked with plumbers to make sure that every possible step to resolve these issues has been taken, but now it’s up to Mother Nature to do her job and create a thaw that will help us bring a resolution to this problem.”

Chapter staff reached out to numerous agencies in the area and were immediately welcomed by Missio Church. The program will use part of the building that currently houses the church’s youth ministries.

“We are blessed to live in a community willing to help us in our time of greatest need,” James said. “We hope we can pay our neighbors back for their generosity down the road.”

Though the day program has moved, the Chapter continues to operate and provide support services for individuals and families impacted by Alzheimer’s disease or other forms of dementia. To learn more about Alzheimer’s disease, visit alz.org or call 1-800-272-3900.

Still Alice to Opens Friday at CNY Cinemas


Alzheimer’s Association staff will lead a discussion and Q&A session following the Syracuse-area debut of the critically-acclaimed film Still Alice, which begins a two-week engagement at the Manlius Art Cinema, 135 E. Seneca St., Manlius, on February 13.

still_alice_posterFollowing the 7:30 p.m. showings on February 13 and 14, Alzheimer’s Association, Central New York Chapter CEO Catherine James will answer questions about Alzheimer’s disease, medical and scientific research, and caregiver support services available locally, as well as the on-screen portrayals in the film.

Still Alice is an award-winning film that provides an important opportunity to raise awareness of Alzheimer’s disease,” James said. “By providing a frank and open portrayal of how devastating the disease is, the film breaks down misconceptions and stigma about the disease, much in the same way Philadelphia broke down barriers surrounding HIV and AIDS.”

Showtimes for the 99-minute film are: February 13, 7:30 p.m.; February 14, 2:15 p.m., 4:30 p.m., and 7:30 p.m.; February 15, 2:15 p.m., and 4:30 p.m.; February 16 at 2:15 and 7:30 p.m.; and February 17 through 19 at 7:30 p.m. The second week’s schedule is to be announced. Tickets are $9 for adults, and $8 for seniors, children, members of the military, matinee showings, and on all Tuesdays.

The film will also open at Cinemapolis in Ithaca on Friday, February 13. No screening times have been announced. Tickets at Cinemapolis are $9.50 for adults, and $8 for seniors, students, and matinees.

Still Alice, distributed by Sony Pictures Classics, is based on the 2006 book of the same title by Lisa Genova. The Alzheimer’s Association worked with writers, directors and actors to guide the accuracy of a diagnosis, current research, the progression of the disease, challenges the person with Alzheimer’s face and interpersonal scenarios between family members. The plot mirrors the experiences that many people have felt on the road to, and following, their diagnosis. Alice Howland, a happily married woman with three grown children, is a renowned linguistics professor who starts to forget words. When she receives a diagnosis of Early-Onset Alzheimer’s Disease, Alice and her family find their bonds thoroughly tested. Her struggle to stay connected to who she once was is frightening, heartbreaking, and inspiring.

Julianne Moore, who stars in the film as Alice, won the Golden Globe for Best Actress in a Motion Picture — Drama, Screen Actors Guild Award for Outstanding Performance by a Female Actor in a Leading Role, British Academy of Film and Television Arts award for Best Actress, and was nominated for an Academy Award. The film stars Alec Baldwin as her husband, and Kristen Stewart, Kate Bosworth and Hunter Parrish as her children.

Memory Keepers Kicks Off Fundraising for Walk

FFBrunch4Our friends from Massena sent along an update from their recent event.

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The Memory Keepers team, a friends and family team from our North Country Walk to End Alzheimer’s, organized a brunch to raise money for their team. Charlene Dumas, one of the team members, told us that their brunch and raffle went great and they will know the final totals from the event soon.

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These “wraparound” events are just one of the many ways you can hold a gathering to raise funds and awareness for Walk. Email our Walk staff, who can provide you ideas or help you brainstorm ways to increase your Walk impact.

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Greater Utica Walk to End Alzheimer’s Changes Seasons, Location

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Walk to End Alzheimer’s is the national movement to unite millions in the fight against Alzheimer’s disease. Beginning in 2015, the Greater Utica Walk will change seasons from fall to spring. The 2015 Greater Utica Walk to End Alzheimer’s will take place on April 26 at SUNY Polytechnic Institute in Utica.

“Central New York winter’s are long and brutal,” said Georgia Vieira, associate development director for the Alzheimer’s Association, Central New York Chapter and manager of the Greater Utica event. “People want to get out after the snow melts and the weather warms up. Why not make that first walk of the spring one for a great cause?”

While the 2015 Walk is only seven months after the 2014 version, it sets the stage for the event to take place every spring. The event also changes homes this year to SUNY Polytechnic Institute from New Hartford Senior High School.

“We are happy to call SUNY Poly our new home,” Vieira said. “It’s a beautiful campus, very close to Downtown Utica and just off the expressway and Thruway. Plus, we have the added benefit of self-containing everything on the campus and keeping people off of streets and out of residential areas. It’s the perfect location for a Walk likes ours that is looking for a more permanent home.”

Online registration and paper registration forms are available at www.alz.org/walk or by calling (315) 617-4025. The 2014 Walk raised nearly $37,000 for the Alzheimer’s Association. Teams from the Utica Comets and Alpine Rehabilitation Center in Little Falls were among the top fundraisers at the 2014 event.

Volunteer Committee Chair Seeks Assistance
nangelicolaA volunteer committee will work with Chapter staff to plan the event. Nick Angelicola of roi Office Interiors in Rome chairs the group of corporate and community representatives from the Mohawk Valley. Booz Allen Hamilton, the U.S. Air Force, and Utica Comets are among the organizations represented on the group.

Angelicola became involved with the event after watching both of his grandmothers live with the disease. “Growing up, Alzheimer’s disease has been prevalent in my life,” Angelicola said. My maternal grandmother was diagnosed with the disease at 54. At a young age I witnessed the terrible pain that this disease caused my Grandmother and my family daily.”

Angelicola’s grandmother fought the disease for 17 years before losing her battle. Recently, his paternal grandmother was diagnosed.

“The pain of the disease does not diminish the second time around,” he said. “Now that I am older, I am able to grasp the full magnitude of the disease. I can now see the affect this disease has on my grandfather, and my entire family.”

Walk to End Alzheimer’s is a community effort powered by volunteers. Angelicola’s hope is to build a robust committee that not only assists on the day of event, but can spread awareness for the event by recruiting new walkers and teams, working with returning participants, and seeking support from the corporate community.

“I hope that having someone from the community advocating for the disease will help the community rally behind the cause and have a huge impact on finding a cure and supporting those who are affected by these terrible disease,” Angelicola said. To join the committee or learn about volunteer opportunities related to Walk, contact Vieira at (315) 617-4025 x120 or by email.

CNY Chapter Named Beneficiary of #unSelfieCNY Giving Contest

The Central New York Community Foundation announced today that the winner of last week’s #unSelfieCNY charitable drawing is Chuck Fiello, Jr. Chuck designated the Alzheimer’s Association, Central New York Chapter to receive the $1,000 grant prize. Fiello designated that the gift be awarded in the honor if his mother, Cynthia Fiello, who was diagnosed with early-onset Alzheimer’s disease in her late-50s.

“It hurts watching my mother go through this, but I am happy knowing that such a great thing is being done in her honor for the holidays,” said Fiello. “I wanted to help in hopes that others one day won’t spend their holidays wondering how much their loved ones remember holiday memories. With the help of the Community Foundation’s gift, I received one of the best Christmas wishes I could ever ask for.”

The Alzheimer’s Association, Central New York Chapter, which is dedicated to the elimination of Alzheimer’s disease and the support of individuals who have been diagnosed with it, is delighted to receive the grant support.

“We are grateful that Chuck selected the Alzheimer’s Association to receive this charitable gift,” said Catherine James, chief executive officer of the Alzheimer’s Association, Central New York Chapter. “The photo he used featuring him and his mom at an SU football game is a reminder of why the work of the Chapter is important. While you may not be impacted by the disease, chances are very good that you know someone who is. That reminder of our mission is the real power of the Central New York Community Foundation’s #unSelfieCNY contest.”

In just 24 hours, hundreds of individuals of all ages, families, and nonprofit staff, board and volunteers turned a camera on themselves for a “selfie” but this time for a charitable purpose. Members of the public were asked to “Tell Your Giving Story” in the form of an “unSelfie” – a photo of themselves stating what inspires them to give back to the community. Posting the photo to a Facebook, Instagram or Twitter account with the hashtag #unSelfieCNY made it eligible for the Community’s Foundation random drawing to designated a $1,000 grant to a Central New York charity.

“Central New York is full of generous people and the #unSelfieCNY effort really highlighted that,” said Peter Dunn, Community Foundation President and CEO. “The people behind the organizations and causes featured in the submitted photos exemplify selflessness during this holiday season. While this effort was focused on only one day, we hope everyone who participated or observed are inspired to support local causes throughout the year.”

Those interested in seeing the #unSelfies posted can visit cnycf.org/givingtuesday.

Alzheimer’s Association Offers Gift Guide for Individuals with Alzheimer’s Disease and Their Caregivers

Black Friday and Cyber Monday have passed, and the holiday shopping season is in full force. Buying presents for friends and family can be difficult enough, but what if the person you are shopping for has Alzheimer’s disease or other form of dementia?

“Gift giving for someone with a dementia diagnosis can be a challenge,” said Catherine James, chief executive officer of the Alzheimer’s Association, Central New York Chapter. “It’s important to keep in mind the ways in which the person has changed because of the disease, the stage of the disease at which they are at, as well as their interests.”

“Just because a person has Alzheimer’s disease does not mean they are no longer interested in their lifelong hobbies. It means the approach to the hobby has to change. As caregivers, we may have to assist the person in initiating the activity,” James said. Continue reading “Alzheimer’s Association Offers Gift Guide for Individuals with Alzheimer’s Disease and Their Caregivers” »

Upcoming Webinars Focus on Behaviors, Holiday Caregiving

manning_logo_rasterIn commemoration of National Alzheimer’s Disease Awareness and National Caregivers Months, the Alzheimer’s Association, Central New York Chapter will conduct two webinars over the next week for dementia caregivers.

Holidays with People with Dementia on Nov. 20 from Noon to 1 p.m.: Learn tips for making the holidays easier, including hosting holiday events, how the person can participate, attending holiday events with the person, and adapting gift giving.

Behaviors and Personal Care on Nov. 25 from Noon to 1 p.m.: Learn quick tips for helping your loved one with personal care, such as bathing and dressing. Have your questions answered around difficult behaviors and challenging personal care situations.

These webinars will be presented live and are designed for the working caregiver to view during the lunch hour. The program is scheduled for 30 to 45 minutes with ample time for questions and answers of our dementia care team. The presentations are free of charge and registration can be completed in advance by clicking the names of the specific presentation above.

Webinars presented by the Central New York Chapter are a special presentation of the Marty Manning Online Education Center, named in memory of the longtime caregiver, support group facilitator and advocate. Learn more about the center and its live and on-demand library of programs by visiting its webpage.

Thanksgiving at the CNY Chapter

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With Thanksgiving coming up next week, we wanted to let you know about our hours and how you can reach us over the holiday.

Wednesday, Nov. 26: Chapter offices, including the Kirkpatrick Day Program, will close at their regular times (4:30 p.m. for offices, 5:30 p.m. for the day program).

Thursday, Nov. 27 (Thanksgiving): Offices are closed.

Friday, Nov. 28: Offices are closed.

All offices reopen on their regular schedule on Monday, Dec. 1.

Just because our office doors are locked does not mean that you cannot reach a dementia expert during the holiday. Our 24-Hour Helpline will operate throughout the weekend at 1-800-272-3900. Our website is also available at www.alz.org. Our team will also be posting to social media through the weekend, so make sure to follow us on Facebook and Twitter.

Even though we are taking some time away for the holiday, you will never be more than a phone call away from someone to listen.