Central New York Chapter News & Action Center

The end of Alzheimer's begins with you.

SUPPORT GROUP ALERT: Weather forces cancelation of Binghamton support group

Tonight’s support group at the Boulevard United Methodist Church in Binghamton, which was slated to begin at 7 p.m., has been canceled. Much of Central New York is under a winter storm warning this evening, with snow and freezing rain on the docket.

The group will not be rescheduled for this month, however caregivers are encouraged to attend one of our upcoming local groups in Broome County or call our 24-hour Helpline at 1-800-272-3900:

  • March 20 (3rd Wednesday) at 4 p.m.: United Methodist Homes Hilltop Campus, 286 Deyo Hill Rd., Johnson City
  • March 28 (4th Thursday) at 10 a.m.: Johnson City Senior Center, 30 Brocton St.
  • April 1 (1st Monday) at 7 p.m.: Boulevard United Methodist Church, 113 Grand Blvd., Binghamton

CNY IN THE SPOTLIGHT: Chapter Earns Accolades at National Conference

Jared Paventi (second from left) pictured with Harry Johns (second from right), and his colleagues from the Georgia, Colorado and Orange County Calif. Chapters

Jared Paventi (second from left) pictured with Harry Johns (second from right), and his colleagues from the Georgia, Colorado and Orange County Calif. Chapters

The Alzheimer’s Association, Central New York Chapter was honored for its achievements during the past year at the 2013 Alzheimer’s Association Leadership Summit in Dallas. The annual conference gathers Association chapters from throughout the country for educational and training programs, and an awards celebration.

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BOWL-A-RAMA: St. Camillus bowling event bolsters Walk To End Alzheimer’s fundraising

therapistsThe St. Camillus ALZStars are a perennial top team at the Greater Syracuse Walk To End Alzheimer’s. For 2013, the team decided to try something new with their fundraising by conducting a “wraparound event.” Their idea was a bowling tournament, which took place in early February at the Solvay Recreation Alley in suburban Syracuse. The team raised more than $500 in donations and door prizes. We’re happy to share photos of them having fun at the bowling alley. Continue reading

STATE OF THE UNION: Alzheimer’s disease mentioned in President’s address

Source: cfr.org

In his first State of the Union address of his second term, President Barack Obama spoke of the need for “investments in science and innovation,” with a specific reference to Alzheimer’s disease. The Alzheimer’s Association applauds the president for underscoring the critical need for medical research and demonstrating that addressing Alzheimer’s disease is a national priority.

If we hope to change the trajectory of this growing epidemic, providing Alzheimer’s scientists with the resources they require must happen now to address one of the most significant cost drivers of Medicare and Medicaid. The average per-person Medicare costs for those with Alzheimer’s and other dementias are three times higher than for those without these conditions. More than 5 million Americans are living with this progressive and fatal disease today. That number is expected to triple as baby boomers age. Continue reading

ARE YOU READY FOR SOME FOOTBALL: Day Program Celebrates “The Big Game”

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The San Francisco 49ers and Baltimore Ravens meet Sunday in the Super Bowl. To celebrate the America’s biggest unofficial holiday, the Kirkpatrick Day Program had a day of football-themed activities.

DSC05852Designed by program aide Mary Daley (pictured above with a participant and another aide, Jay Gables), all of the day’s events revolved around football, from trivia to word games to a special football game designed by Mary to decorations throughout the program. Mary and her husband built a goal post from PVC plumbing pipe and used it as part of a football toss game with the participants.

Even today’s snack had a football party theme: pretzels and beer…root beer, that is.

The celebration culminated with a drawing for a football signed by coaches and players from the Syracuse University football team. It was won by Eilene O’Connor (pictured below with Mary and assistant day program director Amy Gannon), a proud SU alum!

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In memoriam: Leon Johnson

EDITOR’S NOTE: The Chapter mourns the passing of Leon Johnson of Massena. Leon’s family has long walked in his honor at our Walk To End Alzheimer’s team in St. Lawrence County. What follows is a remembrance written by his daughters and offered by his daughter Charlene at his funeral.

Once upon a time there was a boy who was born in 1929 and raised in Brasher Falls by his grandparents.   His grandfather was a carpenter and taught the boy his trade.  After a  somewhat unsettled childhood, the boy graduated from high school and grew into manhood.  He served in the United States Army during the Korean conflict, married a young Italian girl from Massena and had three children—all girls.

One of the man’s good friends and co-workers called the man “Chub” and the man’s wife “Doo-Doo”.  The man and his family spent much time with his friend and his friend’s wife and family at their camp in Canada.  The man’s daughters remember his red plaid bathing suit. The man loved country and gospel music. He loved to sing, and he played the guitar and the accordion….often providing the entertainment at the couple’s home parties.  He shared his talent with all and taught his daughters to do the same. Most people who know the man described him as “gentle”, “kind” and “soft-spoken”.  They remember him as a man of few words and a very good listener.  Because the man favored a calm environment, he often challenged his wife to “fix it” when home life became chaotic. Looking at his wife, he might say, “Are you going to let her wear that to school?”—which was the man’s way of saying, “Tell your daughter she’s not getting out the door wearing that mini skirt”.   Occasionally, the man’s wife would challenge him to have a talk with his daughters when the daughters had managed to create too much chaos in the couple’s home.  The daughters knew that a one-to-one talk with the man, their Dad, meant it was time to shape up.

The man used to get a haircut regularly.  In fact, his daughters were nearing adolescence when they learned that “Pappy’s” wasn’t the barbershop. It was just about the same time when the daughters finally realized why it took the man so long to have that little bit of hair cut. To say that the man was “precise” and a “perfectionist” would be an understatement.  The man would often putter and fuss for hours with the smallest details of a project.  He took great pride in doing good work.  Not everyone knew that when wrapping a present, the man would measure the gift box, measure the wrapping paper, carefully fold and cut the paper with a jack-knife and then tape the box so each side was precisely the same as the other. The man’s lawn always looked like it had been groomed with scissors, and in the winter, his driveway was always scraped down to the pavement and neatly groomed on each side.  The siding on  his house was washed regularly and the house itself was picture perfect—tidy, neat as a pin.  After the man’s daughters grew up and left home, he decided to put an addition on his little house. He added a dining room and a dishwasher.  After all, he said, when he had three daughters at home, he didn’t need a dishwasher.

The man always drove a Ford, and after he and his wife retire,they drove their Ford to Florida during the winter months.  They had many friends there, and he and his wife made a new life for themselves after their retirement.  The man always made the morning coffee and would do the daily crossword and jumble word puzzles.  He joined the service organizations and was most active in the Korean War Veterans’ Association.  He was proud of his country and of his service to his country. He marched in the local parades and participated in service organization ceremonies but also loved to end his afternoon at the Legion where he enjoyed a beer with his buddies. The man was known as “Leon” to all, as “husband” (for almost 60 years) to Lucia, and “Dad” to his three daughters.  When asked why he never said “I love you”, the man said he didn’t need to say it because he showed it.  Of course, he was right but his family and friends want to show him and tell him that today. We are here to celebrate the man and his life and to say to him, “I love you”.  His story is not finished; rather, a new chapter has begun.  We remember the man for what he was and for what he taught us to be.  May our memories of him last forever.

Mohawk Valley Women Invited to a “Ladies Night Out” at Harts Hill Inn

Tickets are on sale for the fifth annual Ladies Night Out, presented by Brookdale Senior Living. Ladies Night Out, the Mohawk Valley’s premier women’s-only event takes place on March 14, from 5 to 8:30 p.m., at Harts Hill Inn in Whitesboro. Proceeds from Ladies Night Out support the Chapter.

Ladies Night Out is designed with the Mohawk Valley woman in mind with a fun evening of shopping, food, cocktails and dancing. Plans are in progress, but confirmed activities include hors d’oeuvres butlered by Utica College men’s hockey team, raffles and wine tasting. Shopping and services from a growing list of vendors, including fashion and accessory boutiques, healthcare providers, jewelers, and salons and day spas, can be viewed online.

New for 2013 is the EMPOWERment Room. Ladies Night Out is more than just a fun event aimed at women. It’s about catering to the needs, wants and interests of all women. The Chapter is taking it to the next level this year with speakers and presenters aimed at empowering women to make informed decisions that can better their life and the life of their family. It is presented this year by Empower Federal Credit Union.

Tickets, which include entry to the event and a commemorative gift, are $30. A limited number of VIP tickets, which include an exclusive cocktail reception, VIP gift, and priority access to pampering services, are $45. General admission and VIP tickets are available online or 617-4025. General admission tickets can also be purchased at NBT Bank branches in Oneida County. The event is presented by Brookdale Senior Living Clare Bridge Clinton and Villas Sherman Brook.